Dec. 7, 2007 — -- Jose Mestre has actually invested the majority of his life progressively disappearing underneath a huge 12-pound facial deformation, which has actually currently rendered him not just blind in one eye however virtually unrecognizable.

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Mestre, who is featured on the Discoexceptionally Channel"s upcoming "My Shocking Story" series, was born via a vascular malformation on his lip. Now 51, Mestre, that resides in Lisbon, Portugal, is wrestling with the decision of just how to treat the facial development, which up till currently Discovery claims was never before rerelocated due to medical misindevelopment, misdiagnosis, financial problems and also religious beliefs.


Is Tright here Hope for Mestre?

While it might challenging for the average perkid to imagine Mestre"s confront without the big tumor, plastic surgeons and also facial reconstructive experts told ABC News that while a surgical procedure to remove it would certainly be considerable it is still certainly feasible.

"In general, one have the right to make substantial renovations to his facial appearance by removing the tumor and reconstructing the area where the tumor was," sassist Dr. Anattracted Wexler, the president of the Amerideserve to Society of Maxillofacial Surgeons and member of the Amerideserve to Society of Plastic Surgeons. "But removing the tumor might not gain back symmeattempt to a perboy."

Tright here likely will certainly still be proof of the tumor after the reconstruction, sassist Dr. Wexler, due to the tissue and bones that have actually been consumed by the malformation for so many years.

"The tumor itself can reason changes in the size of the facial bones or in the facial framework bereason the boosted blood supply can lead to enhanced development in facial tconcern," said Dr. Wexler, that has actually not treated Mestre. "Tbelow might be a facial palsy."

Vascular tumors are congenital, and also physicians say are not totally unwidespread. But even more frequently than not, youngsters who have actually them get them rerelocated at an extremely young age. It"s additionally possible to have a vascular tumor that does not prosper as big as Mestre"s did.


This type of vascular tumor removal does come with dangers, said Dr. Wexler, that included that determining the type of blood vessels within the tumor is vital in this kind of situation. The bigger the arteries connected, the even more extensive the surgery will certainly be.

And, comparable to Mestre"s loss of vision, these tumors deserve to have substantial effects on people"s nerve functions – prefer the capacity to smile, and also even more major afflictions favor heart and also lung problems – even after they are removed.

This sort of procedure takes hrs, according to several plastic surgeons, who were unwilling to estimate specifically just how a lot this sort of treatment would certainly expense.

Religious Beliefs vs. Medical Treatment

Mestre"s faith – he is supposedly a Jehovah"s Witness – is an additional reason he may have actually been doubtful to treat his facial growth.

Jehovah"s Witnesses" interpretation of the Holy bible prohibits taking blood from anyone – leading to them to refuse to undernlinux.org surgeries requiring blood transfusions.

"Our perspective is pretty straightforward and also clear – if the surgical procedure involves the transfusion of blood or a major component of blood (such as plasma) then we look as it as contrary to what is proclaimed in scripture," said J.R. Brown, the spokesperboy for the Jehovah"s Witnesses World Headquarters in New York. "If it does not involve the transfusion of blood then we look at it totally in terms of an individual decision."

When asked what a Jehovah"s Witness would certainly perform if a surgery was a life or death case – or in Mestre"s case, substantially life-transforming – Brvery own said that the scripture still dispermits blood transfusions.

"When one becomes a Witness is a belief that you are taught and something you agree to and say you will certainly do," shelp Brvery own. "Now if that same perchild changes his mind as a result of the stress of surgery, then we check out that perkid as someone that has made the decision to no longer be among Jehovah"s Witnesses. That implies they"ve disassociated themselves."

Brown added that the Holy bible tells fellow Jehovah"s Witnesses to fundamentally overlook those that disassociate from the faith in passeras that instruct followers "not to say a greeting and not to take a meal and to treat him as a guy of the nations."

"It"s not to personally punish someone but the factor the scripture says that is to hope that the perkid seeks repentance and wants to become a witness as soon as again and also be reinproclaimed," said Brvery own.

Jehovah"s Witnesses Spur Medical Breakvia

With more and even more Jehovah"s Witnesses seeking clinical therapy that will certainly not dispute with their religious ideas, medical professionals told ABC News that bloodmuch less surgeries have actually increasingly come to be an option – and possibly a safer one at that – for everyone, and not just those via spiritual limitations.

"Tbelow are better outcomes in most ways once you stop blood transfusions," sassist Dr. Rick Selby, a transplant surgeon at the College of Southern The nlinux.orglden state University Hospital. "It"s not simply a Jehovah"s Witnesses" thing. We"ve developed a strategy that is extensively offered currently for non-witnesses which prevents having actually to provide any type of blood products at all."

Selby is referring to an approach described by medical experts as "cell salvaging," which basically takes a patient"s own blood out, keeps it in the operating room, and also then offers it back to the patient, avoiding a blood transfusion from another perboy and also likewise not calling on waning blood-financial institution sources.

In these situations, but, it"s essential to wager just how much blood will be shed during surgical procedure and also identify if it will exceed the amount of blood that deserve to be taken from the patient himself. In the event that a patient can bleed out or a trauma case arises, a patient unwilling to take a blood transfusion would certainly die.

Performing bloodmuch less surgeries – while they may have been emerged and also honed to serve the requirements of Jehovah"s Witnesses – are commonly misconceived as "difficult," shelp Dr. Patricia Ford, the medical director of the Center for Bloodmuch less Medicine and also Surgery at Pennsylvania, who trains other medical professionals around the country to perform these kinds of surgeries.

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" want treatment – the common misconception is that they want to die, yet they don"t, they simply do not want to break their spiritual convictions." Dr. Ford told ABC News. "They desire the very same treatment everyone else gets simply without blood transfusions."

Finding doctors who are specific and professional enough to execute these kinds of surgeries is not only necessary yet deserve to also be extremely tough, somepoint that Dr. Ford hopes to watch readjust as even more medical professionals realize the benefits of these surgeries.

"Almany everything have the right to be taken care of without blood transfusion, meaning human being have the right to nlinux.org through practically eextremely form of surgery, medical treatment or procedure without blood transfusion," shelp Dr. Ford. "But you have to look for out the appropriate doctors."